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Handle with prayer

Our children learn from us. Good and bad. My oldest learned independence and a severe aversion to ask for help. Asking for help seems weak. We can handle this on our own. We handled POTS at it’s worst. We can handle anything? WRONG. Sometimes we can’t. But we try. And flounder. And then, eventually have […]

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One hundred likes.

Last night, three days after saying goodbye to my oldest daughter and closest friend, I sat down to type a post on one of the POTS Facebook pages that I belong to. I rarely post there, but it was time. This morning it had 104 likes and a flood of comments. “I got quiet when […]

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Memories without photographs

My three youngest girls are all at summer camp leaving just Kirk, T, and I home in quiet. This is our week, T’s and mine – our week to spend together quietly before the craziness of the next two months and the big move to university too far away. We had a million plans. Manicures […]

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POTS: Four Days Later (and no falling shoes)

There’s no fanfare or momentous bouts of joy.  Though I think joy is there, this new freedom has come as quietly as it left.  The dizziness of POTS is nearly gone, we hope, for good. Though we feel so blessed to see that she’s finally found something that works, the house is eerily quiet and […]

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POTS: Her Extraordinary

“When their normal is her extraordinary it’s a very, very precious moment. I know your heart tonight precious friend… It’s full. ♥” – HB   This is all so new.  It’s just been 24-hours since she stood, put her arms out, and broke down crying.  Just 24-hours since that walk to the mailbox and that […]

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POTS: When Hope was Napping.

Kids get sick.  You take them to the doctor.  They get 10 days of some foul-tasting antibiotic.  The next day, really, usually within 24 hours, your kid perks up.  She feels a little better.  Even before the antibiotic is done, your kid seems good as new. That’s the expectation because that’s the norm. And then […]

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Hey, Jealousy.

It’s stupid really.  You know those moments when you’re intellectual, emotionless, brain-self tells you one thing, but the heart tells you another.  Normally it’s ok.  Normally I’m strong and tough and pushing forward and looking at the blessings and truly believing that God will take this and make something beautiful of it all.  Then I […]

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POTS: Physical Therapy

Until now, I’ve had no experience with physical therapy, nor a very accurate understanding of what it could entail.  I was shocked to see that my referral approved 72 visits between now and May.  That’s 3 visits/week which is really going to shake up our schedule a bit… probably a good thing. Our first appointment […]

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POTS: Sprinting again (figuratively)

May be it’s just me, but it seems like it’s easy to slip into “comfortable” with chronic illnesses.  Not that we’re comfortable at all, but unlike the “take this for 10 days and you’re done” sort of illnesses, the constant attack/fight/push gets exhausting and there are times when I feel like we just sit back […]

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POTS: Just a bit of “normal” at The Script concert.

I’d hoped to write a moving post about the concert that I attended last night because the concert truly was moving.  May be I’m just tired or too far into this day of ordinary to summon the right words.  May be the right words for those precious moments just don’t exist outside of rock songs […]

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