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The second good-bye…

…is easier. I feel like it shouldn’t be. Like somehow I’m not a good mom because I wasn’t sobbing all the way home. But it was easier. This morning Tiara packed up her things while I tidied up my office and the girls worked on school assignments. We made a list of errands just like […]

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One hundred likes.

Last night, three days after saying goodbye to my oldest daughter and closest friend, I sat down to type a post on one of the POTS Facebook pages that I belong to. I rarely post there, but it was time. This morning it had 104 likes and a flood of comments. “I got quiet when […]

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Memories without photographs

My three youngest girls are all at summer camp leaving just Kirk, T, and I home in quiet. This is our week, T’s and mine – our week to spend together quietly before the craziness of the next two months and the big move to university too far away. We had a million plans. Manicures […]

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A POTS Reality Check. Finding empathy.

(For those of you who don’t know POTS, it’s a chronic illness that reared it’s ugly head into my oldest daughter’s life two years ago. POTS is ugly, but we all have our ugly. And some days, we all have a reality check too. Every kid has something. Whether it’s an illness, a personality quirk, […]

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POTS: Emergency Preparedness For POTS

I remember moving to Maryland just days before a hurricane knocked out power for days.  No power = no water.  Of course, then we’d planned.  We’d filled bathtubs and water bottles and buckets.  We did the best we could, but then, there wasn’t a Potsie in the family and you can’t always plan because you […]

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POTS: Four Days Later (and no falling shoes)

There’s no fanfare or momentous bouts of joy.  Though I think joy is there, this new freedom has come as quietly as it left.  The dizziness of POTS is nearly gone, we hope, for good. Though we feel so blessed to see that she’s finally found something that works, the house is eerily quiet and […]

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POTS: Her Extraordinary

“When their normal is her extraordinary it’s a very, very precious moment. I know your heart tonight precious friend… It’s full. ♥” – HB   This is all so new.  It’s just been 24-hours since she stood, put her arms out, and broke down crying.  Just 24-hours since that walk to the mailbox and that […]

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POTS: When Hope was Napping.

Kids get sick.  You take them to the doctor.  They get 10 days of some foul-tasting antibiotic.  The next day, really, usually within 24 hours, your kid perks up.  She feels a little better.  Even before the antibiotic is done, your kid seems good as new. That’s the expectation because that’s the norm. And then […]

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Hey, Jealousy.

It’s stupid really.  You know those moments when you’re intellectual, emotionless, brain-self tells you one thing, but the heart tells you another.  Normally it’s ok.  Normally I’m strong and tough and pushing forward and looking at the blessings and truly believing that God will take this and make something beautiful of it all.  Then I […]

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POTS: Physical Therapy

Until now, I’ve had no experience with physical therapy, nor a very accurate understanding of what it could entail.  I was shocked to see that my referral approved 72 visits between now and May.  That’s 3 visits/week which is really going to shake up our schedule a bit… probably a good thing. Our first appointment […]

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