Hey, Jealousy.

It’s stupid really.  You know those moments when you’re intellectual, emotionless, brain-self tells you one thing, but the heart tells you another.  Normally it’s ok.  Normally I’m strong and tough and pushing forward and looking at the blessings and truly believing that God will take this and make something beautiful of it all.  Then I […]

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POTS: Physical Therapy

Until now, I’ve had no experience with physical therapy, nor a very accurate understanding of what it could entail.  I was shocked to see that my referral approved 72 visits between now and May.  That’s 3 visits/week which is really going to shake up our schedule a bit… probably a good thing. Our first appointment […]

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POTS: Sprinting again (figuratively)

May be it’s just me, but it seems like it’s easy to slip into “comfortable” with chronic illnesses.  Not that we’re comfortable at all, but unlike the “take this for 10 days and you’re done” sort of illnesses, the constant attack/fight/push gets exhausting and there are times when I feel like we just sit back […]

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POTS: Just a bit of “normal” at The Script concert.

I’d hoped to write a moving post about the concert that I attended last night because the concert truly was moving.  May be I’m just tired or too far into this day of ordinary to summon the right words.  May be the right words for those precious moments just don’t exist outside of rock songs […]

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POTS: Helpless and Frustrated

I hate the word “helpless” and the feeling even more. This is another “sick” week, not from POTS itself, but some uninvited virus has settled in for a stay and just doesn’t want to leave.  It makes everything harder.  It makes my girl miserable.  And though she’s 17, moments like this, she looks up at […]

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POTS: Back in the Saddle

Today it’s more than a metaphor, but the metaphor still applies. It’s been a long year for Tiara and I.  More for her than me.  She’s been through her life’s longest roller coaster, but I’ve been there too, taxi driver and cheerleader, butt kicker and shoulder for leaning.  She’s been to more doctors in the […]

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POTS: Letting Go (Not Really)

As parents, do we ever really let go?  I don’t know.  I suppose there will be a time when I look across the world at my girls all grown up and know that they are OK, but of course I’ll still love them and pray for them and hop on that plane or car or […]

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POTS: The Breakthrough We Didn’t Want

The Experience: Last fall Tiara struggled with migraines than came weekly and lasted for day – often 5.  It  was horrible and debilitating and kept her out of school more than in.  We know now that migraines can be a part of POTS.  Since December she’s been on a medication that’s keep them away, mostly.  […]

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POTS Images: The Girl with a Walker

When I think of a walker I picture…  Well, what do you picture?  It probably isn’t a beautiful 17 year-old girl.  She’s probably older than that, right?  A bit more wrinkled? And that’s a problem.  Walkers conjure up images of “old people,”  which is ridiculous if you think about it because we all know that […]

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POTS: The Shifting Timeline

Up until recently I bragged that we were never sick.  An occasional sniffle, the childhood earache.  They came and went with time and chicken soup and only rarely a visit to the doctor if we really needed something stronger. Tiara was no different.  She was athletic and strong.  She was independent and capable.  So though […]

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